What is it?
After a spinal cord injury, your bowel cannot signal "I am full" to your brain in the normal way. Bowel control may be lost, but with a planned program you can have a predictable, accident-free routine that fits your life.
There are two main bowel patterns after SCI:
- Reflexic (UMN) bowel โ injury at or above L1. The reflex arc still fires when the rectum fills. Suppositories and digital stimulation work well.
- Areflexic (LMN) bowel โ injury below L1, including cauda equina. Slower-moving, prone to constipation and accidents from positional change.
How you might feel
- Constipation that lasts more than 2โ3 days
- Accidents between scheduled program times
- Stomach cramping, bloating, or distension
- Sweating, headache, or AD signs (above T6) when the bowel is full
- Hemorrhoids or rectal bleeding from straining
What a good bowel program looks like
- Same time, same place every day (or every other day). The body trains to a schedule. After breakfast or dinner uses the gastrocolic reflex.
- Sit upright if possible โ gravity helps.
- Trigger the reflex. Reflexic bowel: glycerin or bisacodyl suppository, then digital stimulation (gloved finger, lubricated, gentle circular motion against the rectal wall, 15โ20 seconds, every 5โ10 minutes). Areflexic bowel: mini-enema (Enemeez) or manual evacuation. Digital stimulation does not work well.
- Allow 30โ45 minutes for completion.
- Skin check of the perianal area afterward.
๐ก Tip
If your program is taking more than an hour or you are having frequent accidents, it is broken. Talk to your team โ small adjustments to medicine timing, diet, or equipment usually fix it.
What helps
- Fiber: 15โ25 grams per day. Adjust over weeks, not days.
- Fluids: match what your team set, usually 2 liters per day.
- Daily standing or weight-bearing if cleared.
- Activity: even small amounts help motility.
- Transanal irrigation (Peristeen, Aquaflush) โ a daily or every-other-day water flush of the lower colon. Many patients report shorter program time and far fewer accidents. Discuss with your team.
๐ Medicines
- Stool softeners โ docusate 100 mg twice daily.
- Stimulant laxatives โ senna, bisacodyl. Adjust to keep stool soft and predictable.
- Polyethylene glycol (MiraLAX) โ gentle daily option.
- Avoid mineral oil long-term (lipid pneumonia risk if aspirated).
๐ Call your doctor if
- No bowel movement in 5 days despite the program.
- Severe abdominal pain or distension.
- Bright red blood with stool more than once.
- AD signs that resolve only after manual disimpaction (your bowel is too full).
At your next clinic visit
Bring a 2-week program log: time, what you used, what came out, any accidents. Don't reinvent your program every week โ change one variable at a time and watch for 1โ2 weeks.
Education only. Not medical advice. If you have a clinical question, talk to your rehab team. For emergencies call 911.